Don't Stop Dreaming because You Had a Nightmare

28 September 2016
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Don't Stop Dreaming because You Had a Nightmare

Three years ago, it was only the 4 of us, Me, Chad, CJ and Chase. I remember October 2013 like it was yesterday. We were planning our surprise trip to Disney. Never in a million years we would ever imagine it turn out the way it did. In an effort to keep our family and friends updated on Chase's condition we started a carepage. Today I come across a draft Chad and I put together as our last post on that page. Thinking of how to explain the past few weeks was difficult. Our future was totally unknown and the message full of emotion and hope for what Chase will accomplish in the future. Just a month after this post we would see the resiliency of our little superhero! 

Dec 16, 2013

"Happy Holidays to all…The holiday season is a special time of year when families bond closer together, we take time to remember those who are no longer with us, and celebrate the year to come.

For us, this holiday is filled with mixed emotions. We celebrate as Chase continues to get a little stronger and shows us more and more of his infectious personality each day. He is now out of the Pediatric Intensive Care Unit which is a huge step closer toward his rehab and recovery. On the flip side, unfortunately the tissue under his hands and feet were in extremely worse shape than initially anticipated. To avoid further damage to healthy tissue, complete amputation was required on all four extremities (on top of the H-Flu Type A bacteria that was initially found in his blood stream when he was first admitted, they recently discovered significant E-Coli bacteria present in his body as well). The news was extremely hard to swallow, but considering everything we put it into proper perspective:

    • During the first few hours of his illness while he was in septic shock there was a good chance Chase’s vitals wouldn’t respond to medication and he might not have made it past 24 to 48 hours…
    • Next, there was significant concern he may be on a combination of blood pressure medicine, heart medication, ventilator, and/or dialysis for the rest of his life to keep his organs functioning properly…
    • One week in, after the discovery of the hemorrhage in his brain (which covered over 30% of his brain) there was serious concern to what his neurological picture would look like and/or if he would recover since his body was already compromised…
    • Next as they weaned his sedation medication he was initially unresponsive to both eye and ear exams. There was fear that he may not be able to hear and/or have serious vision problems moving forward…
    • Finally, when they recently discovered this infection under the damaged tissue in his hands and his feet, there was a chance he would have to have the amputation be above the knees and elbows which would limit the types of prosthetics he would be able to use.

Chase beat all the above odds! Chase is not only our Superhero, but him as well as other children in this and other hospitals across the world fighting these “impossible” battles are truly heroes and should give us all an additional reason to celebrate this holiday.

“GRATITUDE turns what we have into ENOUGH and MORE… It turns denial into acceptance, chaos into order, confusion into clarity… It makes sense of our past, brings peace for today, and creates a vision for tomorrow” - Melody Beattie

So friends and family and all those concerned about our little Chase-Man, the best medicine for him right now is LOVE, ACCEPTANCE, and OPTIMISM to be the best he can be. Tears are inevitable as we learn to accept, but we hope they turn into joyous tears as he continues to beat the odds. We are committed to do what’s best for CJ, Chase, and their soon to be born baby BROTHER! :)

With Love
Chad, Chisa, CJ, and Chase

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